About us

Portrait of RWJF Senior Program Officer Paul Tarini Portrait of PatientsLikeMe Co-Founder and President Ben Heywood

PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.

Founded on a philosophy of “openness,” PatientsLikeMe aggregates patient-reported data from over 380,000 members on 2,500+ diseases, analyzes them and shares the results with healthcare and life science companies to accelerate research and develop more effective treatments.

With support from the Robert Wood Johnson Foundation, we’re now building the Open Research Exchange (ORE) so that researchers, clinicians, academics and patients can collaborate to put patients at the center of the clinical research process. ORE is the hub where we can work together to develop new health outcome measures and increase our collective understanding of disease – faster than ever before.

Our patient communities

PatientsLikeMe has one of the largest and most active patient communities online, with more than 380,000 members contributing real-world health data on 2,500+ diseases. Whatever you’re interested in measuring, you’ll find thousands of research-ready patients in our network, including patients with:

  • Fibromyalgia
  • Multiple Sclerosis
  • Parkinson’s Disease
  • ALS
  • Epilepsy
  • Rheumatoid Arthritis
  • Systemic Lupus Erythematosus
  • Major Depressive Disorder
  • Diabetes Type II
  • Chronic Fatigue Syndrome
  • HIV
  • Psoriasis
  • Bipolar II
  • Bipolar Disorder (unspecified)
  • Bipolar I