Collection and use of personal information
We collect Personal Information from you at the time you register to participate at the ORE Platform, when you submit information when registering to use or using the ORE Platform, when you create, import, or edit patient-reported outcome questionnaires (“PRO”), and when you otherwise interact with PatientsLikeMe online and offline. We use your Personal Information to contact you about the ORE Platform’s features, about the PROs you interact with, and about your other interactions relating to the ORE Platform. We also use and disclose your Personal Information as set forth below.
Information we collect or store as you access and use the ORE platform
In addition to any Personal Information or other information that you choose to submit to us via our ORE Platform, we and our third-party service providers may use a variety of technologies that automatically (or passively) store or collect certain information whenever you visit or interact with the ORE Platform (“Usage Information”). This Usage Information may be stored or accessed using a variety of technologies that may be downloaded to your personal computer, laptop, tablet or mobile phone (a “Device”) whenever you visit or interact with our ORE Platform. Usage Information may be nonidentifying or may be associated with you.
This usage Information may include:
- your IP address or other unique identifier (“Device Identifier”). A Device Identifier is a number that is automatically assigned to your Device used to access the ORE Platform, and our computers identify your Device by its Device Identifier;
- your Device functionality (including browser, operating system, hardware, mobile network information);
- the URL that referred you to our ORE Platform;
- the areas within the ORE Platform that you visit and your activities there, including remembering you and your preferences;
- your Device location;
- your Device characteristics; and
- certain other Device data, including the time of day, among other information.
To collect Usage Information, we may utilize a variety of technologies, such as cookies (a small data file placed on your computer when you visit the Site), web beacons (small graphic images or other web programming code that may be included in our Site pages), and embedded scripts (code that is designed to collect information about your interactions with the Site, such as which links you click on) (“Tracking Technologies”). Some mobile service providers may also provide us and/or our third-party service providers with information regarding the device identifier and/or physical location of the device used to access the Site. Tracking Technologies may set, change, alter or modify settings or configurations on your Device.
Use & disclosure of personal information
Except as indicated within this Policy, we will not sell, rent or transfer your Personal Information to or otherwise share your Personal Information with third parties. We may publicize and use your name and organizational affiliation as we see fit and via any means or medium we choose, including for purposes of publicizing the ORE Platform or our services or for publicly referring to you, your PRO or your research. We may share or transfer your Personal Information as directed to do so by you. We may otherwise share Personal Information or Usage Information with third party vendors who act for us for further processing in accordance with the purposes for which the information was originally collected, or for purposes to which you have subsequently consented. For example, sometimes a third party vendor may have access to your Personal Information or Usage Information in order to support our information technology or to help obtain, compile and manage the information for us.
We may access, use, preserve, transfer or disclose your information (including Device Identifiers and Personal Information), including disclosure to third parties: (i) to satisfy any applicable law, regulation, subpoenas, governmental requests or legal process if in our good faith opinion such is required or permitted by law; (ii) to enforce the ORE Platform Agreement or other agreements or policies applicable to the ORE Platform, including investigation of potential violations thereof; (iii) to protect the safety, rights, property or security of the ORE Platform or any third party; and/or (iv) to detect, prevent or otherwise address fraud, security or technical issues.
In the event that PatientsLikeMe goes through a business transition, such as a merger, acquisition by another entity, or transfer of all or a portion of its assets, your Personal Information or Usage Information might be among the assets transferred. You will not be notified in advance of any such change in ownership or control of your Personal Information.
Links to other websites
You should know that while visiting the ORE Platform, you can be directed, through links, to websites that are beyond our control. We are not responsible for the privacy practices and policies of such linked website.
Maintenance of Accurate Information
We have established procedures to correct inaccurate information in a timely manner. If you have any reason to believe that Personal Information about you that is stored and maintained by us is incorrect, please contact us by email at: firstname.lastname@example.org.
Protection of personal information
We strive to maintain the reliability, accuracy, completeness and currency of your Personal Information in our databases and to protect the privacy and security of our databases and the information we collect. Any Personal Information that you provide to us will be stored on our computer network servers. We maintain reasonable physical, electronic and procedural safeguards to protect the confidentiality of your Personal Information. The security measures in place for the ORE Platform, our databases containing your Personal Information and their servers aim to protect the loss, misuse or alteration of the information you provide to us. If you have any questions or concerns regarding the security of your information, please email us at email@example.com.
We reserve the right to change this Policy at any time, so you should review it each time you access the ORE Platform. If we change this Policy, we will post a link to the revised Policy at the ORE Platform.
Transfer of personal information to the united states
If you have any questions or suggestions regarding this Policy, please contact us at:PatientsLikeMe Inc.
Chief Privacy Officer
160 Second Street
Cambridge, MA 02142