| Title/Author/Domains | Description | Performance | Status | |
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Epilepsy Surgery Inventory (ESI)-55
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The ESI-55 covers eleven health concepts: health perceptions; energy/fatigue; overall quality of life; social functioning emotional well-being; cognitive functioning; role limitations due to emotional problems, memory problems, or physical health problems; physical functioning; and pain. |
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EuroQoL EQ-5D (EQ-5D)
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The EQ-5D™ is an instrument used as a measure of health outcome. It is applicable to a wide range of health conditions and treatment and provides a simple descriptive profile and a single index value for health status. |
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Expanded Prostate cancer Index Composite (EPIC)
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The Expanded Prostate cancer Index Composite (EPIC) was developed to evaluate patient function and bother after prostate cancer treatment. It represents an adaptation of the UCLA-Prostate Cancer Index (PCI), which researchers from University of Michigan and UCLA modified to enhance sensitivity to therapy effects by increasing the number of prostate-targeted items. |
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Functional Living Index: Cancer (FLIC)
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The Functional Living Index: Cancer (FLIC) is a cancer-specific quality of life instrument that measures the effects of symptoms and treatments on overall functional ability. |
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GAD-7
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The GAD-7 is a brief measuring for assessing generalized anxiety disorder (GAD), which is one of the most common psychiatric disorders. This scale is self-administered and can be used for screening and assessment of severity of GAD in clinical practice and research. |
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General Self-Efficacy Scale (GSE)
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The General Self-Efficacy Scale (GSE) is an instrument designed to measure optimistic self-beliefs that help patients cope with a variety of difficult life demands. |
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GerdQ
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The GerdQ was developed as a patient centered, self-administered questionnaire to assist with the diagnosis of GERD (gastro-esophageal reflux disease). According to the instrument developers, there is evidence that primary care physicians struggle to make an accurate diagnosis of GERD and manage it effectively. This instrument helps differentiate between individuals who have GERD significantly impacting their daily life and those who only experience occasional symptoms. |
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Geriatric Depression Scale (GDS)
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This scale was developed as a basic screening measure for depression in older adults. |
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Global Health Scale
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The PROMIS Global Health Scale is a general measure of overall health, including physical and mental health. |
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Hallucinations and Parkinson’s disease
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Please be aware that this questionnaire specifically enquires about unreal experiences that may have personally affected you. Your assistance will help researchers gain a clearer understanding of these experiences in Parkinson’s disease and/or Dementia with Lewy Bodies. These questions are not meant to upset you in any way and if they raise issues that you have not previously spoken about, then we advise that you discuss this further with your specialist. |
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Health Assessment Questionnaire (HAQ)
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The HAQ was developed to focus on self-reported patient-oriented outcome measures in patients with rheumatic diseases, HIV/AIDS, and normal aging, therefore should be considered a generic, non-disease-specific instrument. It was one of the first self-report functional status measures. |
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Health Related Quality of Life (HRQoL)
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The Quality of Life survey is used to assess how patients feel and function as a result of health or treatment. The questions in the survey are specific to the patient's health. The Quality of Life survey asks questions patients find valuable in measuring physical, mental, and social functioning related to their health. |
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Health-related quality of life (HRQOL) measures from HIV Cost and Services Utilization Study (HCSUS)
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The HCSUS was the first major research effort to collect information on a nationally representative sample of people in care for HIV infection. One measure included in the study is health-related quality of life (HRQOL). Other measures in the core study include cost, use, quality of care; access to and unmet needs for care; social support; knowledge of HIV; clinical outcomes; mental health; and the relationship of these variable to provider type and patient characteristics. |
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Health-Related Quality of Life Items in Health Care Cost and Services Utilization Study
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The Health-Related Quality of Life survey is a self report instrument measuring Quality of Life. It was developed by Ron D. Hays, PhD and colleagues. The HRQOL survey items were included in a larger Health Care Cost and Services Utilization Study. |
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Health Utilities Index (HUI)
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The Health Utility Index describes and measures health status and health-related quality of life to produce utility scores. |
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Holistic Complementary and Alternative Medicine Questionnaire
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The Holistic Complementary and Alternative Medicine Questionnaire is a one dimensional questionnaire measuring attitudes towards complementary and alternative medicine along with beliefs about holistic health. It was developed in 2003. |
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Impact of Chronic Pain Scale
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This scale is intended for measuring the impact of chronic pain on daily life activities. |
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Kidney Disease and Quality of Life Short Form (KDQOL-SF1.3)
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The KQDOL-SF 1.3 instrument is a self-report measure consisting of 80 items developed to measure quality of life for individuals with kidney disease and on dialysis. |
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KINDL
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The KINDL is a generic instrument used to assess the health-related quality of life of children and adolescents. |
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Lung Cancer Symptom Scale
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The Lung Cancer Symptom Scale (LCSS) is an instrument designed to measure of quality of life (QoL) for adults living with lung cancer. |
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MD Anderson Symptom Inventory (MDASI)
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The MD Anderson Symptom Inventory (MDASI) measures symptoms of the highest severity and frequency and their impact on daily functioning. |
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Medical Outcomes Survey (MOS) Measures of Quality of Life Core Survey
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The 116-item MOS core survey measures of quality of life include physical, mental, and general health. Three additional versions are available, the SF-12, SF-20, and SF-36. |
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Mental Health Inventory
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The Mental Health Inventory is a set of mental health questions from the Medical Outcomes Study. It is distributed by Rand Health. |
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Migraine Disability Assessment (MIDAS)
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The Migraine Disability Assessment (MIDAS) is an instrument designed to measure the impact of headaches. |
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Mini Mental State Examination (MMSE)
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The Mini Mental State Examination (MMSE) is a tool designed to measure and screen for cognitive impairment. |
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Movement Disorders Rating Scale (MDRS)
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The MDRS (Movement Disorders Rating Scale) was developed by PatientsLikeMe to help our patients keep track of their overall condition by measuring function in all parts of your body. PatientsLikeMe uses a modified version of the MDS-UPDRS for patients with movement disorders, such as Multiple System Atrophy and Progressive Supranuclear Palsy. |
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MS-TAQ Bulgarian
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The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. |
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MS-TAQ English
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The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. |
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MS-TAQ German
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The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. |
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MS-TAQ Greek
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The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. |
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