The PROMs in the ORE Library include instruments and items created on the ORE platform, instruments that PatientsLikeMe has developed, publicly available instruments from PROMIS, and content from other PRO databases.
Show instruments that match:
Title/Author/Domains Description Performance Status

Epilepsy Surgery Inventory (ESI)-55

Authors
RAND
Conditions
Epilepsy, Epilepsy Surgery
  • Quality of Life

The ESI-55 covers eleven health concepts: health perceptions; energy/fatigue; overall quality of life; social functioning emotional well-being; cognitive functioning; role limitations due to emotional problems, memory problems, or physical health problems; physical functioning; and pain.

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  • Published
  • 0 items
  • Nothing to import

EuroQoL EQ-5D (EQ-5D)

Authors
EuroQol Group
Conditions
All
  • Quality of Life

The EQ-5D™ is an instrument used as a measure of health outcome. It is applicable to a wide range of health conditions and treatment and provides a simple descriptive profile and a single index value for health status.

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  • Published
  • 0 items
  • Nothing to import

Expanded Prostate cancer Index Composite (EPIC)

Authors
Martin G. Sanda, John T. Wei, Mark S. Litwin, Rodney L. Dunn
Conditions
Prostate Cancer
  • Quality of Life

The Expanded Prostate cancer Index Composite (EPIC) was developed to evaluate patient function and bother after prostate cancer treatment. It represents an adaptation of the UCLA-Prostate Cancer Index (PCI), which researchers from University of Michigan and UCLA modified to enhance sensitivity to therapy effects by increasing the number of prostate-targeted items.

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  • Published
  • 0 items
  • Nothing to import

Functional Living Index: Cancer (FLIC)

Authors
Harvey Schipper
Conditions
Cancer
  • Physical well-being and ability, Emotional state, Sociability, and Symptom(s)

The Functional Living Index: Cancer (FLIC) is a cancer-specific quality of life instrument that measures the effects of symptoms and treatments on overall functional ability.

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  • Published
  • 0 items
  • Nothing to import

GAD-7

Authors
Dr. Robert L. Spitzer, Dr. Janet B.W. Williams, Dr. Kurt Kroenke
Conditions
All
  • Mental Health

The GAD-7 is a brief measuring for assessing generalized anxiety disorder (GAD), which is one of the most common psychiatric disorders. This scale is self-administered and can be used for screening and assessment of severity of GAD in clinical practice and research.

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  • Published
  • 7 items
  • Download JSON (beta)
  • License prohibits import

General Self-Efficacy Scale (GSE)

Authors
Ralf Schwarzer, Matthias Jerusalem
Conditions
Any
  • Personal Agency and Self-Efficacy

The General Self-Efficacy Scale (GSE) is an instrument designed to measure optimistic self-beliefs that help patients cope with a variety of difficult life demands.

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  • Published
  • 0 items
  • Nothing to import

GerdQ

Authors
R. Jones, O. Junghard, J. Dent, N. Vakil, K. Halling, B. Wernersson, T. Lind
Conditions
GERD
  • Reflux

The GerdQ was developed as a patient centered, self-administered questionnaire to assist with the diagnosis of GERD (gastro-esophageal reflux disease). According to the instrument developers, there is evidence that primary care physicians struggle to make an accurate diagnosis of GERD and manage it effectively. This instrument helps differentiate between individuals who have GERD significantly impacting their daily life and those who only experience occasional symptoms.

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  • Published
  • 0 items
  • Nothing to import

Geriatric Depression Scale (GDS)

Authors
J.A. Yesavage, T.L. Brink, T.L. Rose, O. Lum, V. Huang, M.B. Adey, V.O. Leirer
Conditions
Geriatric Depression
  • Quality of Life

This scale was developed as a basic screening measure for depression in older adults.

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  • Published
  • 0 items
  • Nothing to import

Global Health Scale

Authors
PROMIS
Conditions
All
  • General Health

The PROMIS Global Health Scale is a general measure of overall health, including physical and mental health.

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  • Published
  • 10 items
  • Download JSON (beta)
  • License prohibits import

Hallucinations and Parkinson’s disease

Authors
Ruth Wood, Kuven Moodley, Sarah Hopkins
Conditions
Parkinson's Disease
  • General Research

Please be aware that this questionnaire specifically enquires about unreal experiences that may have personally affected you. Your assistance will help researchers gain a clearer understanding of these experiences in Parkinson’s disease and/or Dementia with Lewy Bodies. These questions are not meant to upset you in any way and if they raise issues that you have not previously spoken about, then we advise that you discuss this further with your specialist.

Completion time
7.26 min

Health Assessment Questionnaire (HAQ)

Authors
James F. Fries
Conditions
All
  • Quality of Life

The HAQ was developed to focus on self-reported patient-oriented outcome measures in patients with rheumatic diseases, HIV/AIDS, and normal aging, therefore should be considered a generic, non-disease-specific instrument. It was one of the first self-report functional status measures.

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  • Published
  • 0 items
  • Nothing to import

Health Related Quality of Life (HRQoL)

Authors
PatientsLikeMe
Conditions
All
  • Social functioning  (1)
  • Physical functioning  (1)
  • Mental functioning  (1)
  • Quality of Life

The Quality of Life survey is used to assess how patients feel and function as a result of health or treatment. The questions in the survey are specific to the patient's health. The Quality of Life survey asks questions patients find valuable in measuring physical, mental, and social functioning related to their health.

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Health-related quality of life (HRQOL) measures from HIV Cost and Services Utilization Study (HCSUS)

Authors
RAND
Conditions
HIV
  • Quality of Life

The HCSUS was the first major research effort to collect information on a nationally representative sample of people in care for HIV infection. One measure included in the study is health-related quality of life (HRQOL). Other measures in the core study include cost, use, quality of care; access to and unmet needs for care; social support; knowledge of HIV; clinical outcomes; mental health; and the relationship of these variable to provider type and patient characteristics.

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  • Published
  • 0 items
  • Nothing to import

Health-Related Quality of Life Items in Health Care Cost and Services Utilization Study

Authors
RAND
Conditions
HIV
  • Physical activity  (1)
  • Overall Function  (1)
  • Emotional Function  (1)
  • Quality of Life

The Health-Related Quality of Life survey is a self report instrument measuring Quality of Life. It was developed by Ron D. Hays, PhD and colleagues. The HRQOL survey items were included in a larger Health Care Cost and Services Utilization Study.

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Health Utilities Index (HUI)

Authors
David Feeny, William Furlong, George Torrance
Conditions
Any
  • For HUI2 and HUI3: Sensation, Mobility, Emotion, Cognitive, Self-Care, Pain, Fertility, Vision, Hearing, Speech, Ambulation, and Dexterity

The Health Utility Index describes and measures health status and health-related quality of life to produce utility scores.

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  • Published
  • 0 items
  • Nothing to import

Holistic Complementary and Alternative Medicine Questionnaire

Authors
Hyland, M., Lewith, G., Westoby, C.
Conditions
All
  • Holistic Health  (1)
  • Treatment Evaluation

The Holistic Complementary and Alternative Medicine Questionnaire is a one dimensional questionnaire measuring attitudes towards complementary and alternative medicine along with beliefs about holistic health. It was developed in 2003.

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Impact of Chronic Pain Scale

Authors
Tamara Michel
Conditions
All
  • Chronic Pain

This scale is intended for measuring the impact of chronic pain on daily life activities.

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Kidney Disease and Quality of Life Short Form (KDQOL-SF1.3)

Authors
RAND, University of Arizona
Conditions
Kidney Disease, Dialysis
  • Quality of Life

The KQDOL-SF 1.3 instrument is a self-report measure consisting of 80 items developed to measure quality of life for individuals with kidney disease and on dialysis.

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  • Published
  • 0 items
  • Nothing to import

KINDL

Authors
Monika Bullinger, Ulrike Ravens-Sieberer
Conditions
Any
  • Health-related Quality of Life

The KINDL is a generic instrument used to assess the health-related quality of life of children and adolescents.

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  • Published
  • 0 items
  • Nothing to import

Lung Cancer Symptom Scale

Authors
Patricia J. Hollen, Richard J. Gralla, Mark G. Kris
Conditions
Lung Cancer
  • Quality of Life, Psychological, Social, and Spiritual

The Lung Cancer Symptom Scale (LCSS) is an instrument designed to measure of quality of life (QoL) for adults living with lung cancer.

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  • Published
  • 0 items
  • Nothing to import

MD Anderson Symptom Inventory (MDASI)

Authors
Charles Cleeland
Conditions
Cancer
  • Symptoms

The MD Anderson Symptom Inventory (MDASI) measures symptoms of the highest severity and frequency and their impact on daily functioning.

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  • Published
  • 0 items
  • Nothing to import

Medical Outcomes Survey (MOS) Measures of Quality of Life Core Survey

Authors
RAND
Conditions
Chronic conditions
  • Quality of Life

The 116-item MOS core survey measures of quality of life include physical, mental, and general health. Three additional versions are available, the SF-12, SF-20, and SF-36.

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  • Published
  • 0 items
  • Nothing to import

Mental Health Inventory

Authors
RAND
Conditions
All
  • Mental Health  (1)
  • Quality of Life

The Mental Health Inventory is a set of mental health questions from the Medical Outcomes Study. It is distributed by Rand Health.

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Migraine Disability Assessment (MIDAS)

Authors
Richard B. Lipton, Walter F. Stewart
Conditions
Migraine Disorders
  • Physical functioning

The Migraine Disability Assessment (MIDAS) is an instrument designed to measure the impact of headaches.

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  • Published
  • 0 items
  • Nothing to import

Mini Mental State Examination (MMSE)

Authors
Marshal F. Folstein, Susan E. Folstein
Conditions
Cognitive Impairment
  • Psychological and Coping

The Mini Mental State Examination (MMSE) is a tool designed to measure and screen for cognitive impairment.

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  • Published
  • 0 items
  • Nothing to import

Movement Disorders Rating Scale (MDRS)

Authors
PatientsLikeMe
Conditions
Multiple System Atrophy, Progressive Supranuclear Palsy
  • Functional Status

The MDRS (Movement Disorders Rating Scale) was developed by PatientsLikeMe to help our patients keep track of their overall condition by measuring function in all parts of your body. PatientsLikeMe uses a modified version of the MDS-UPDRS for patients with movement disorders, such as Multiple System Atrophy and Progressive Supranuclear Palsy. 

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MS-TAQ Bulgarian

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Medication  (1)
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. 

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MS-TAQ English

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Side effects  (1)
  • Coping strategies  (1)
  • Barriers  (1)
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions.

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MS-TAQ German

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions.

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  • Published
  • 0 items
  • Nothing to import

MS-TAQ Greek

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Barriers  (1)
  • Coping Strategies  (1)
  • Side Effects  (1)
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions.

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