The PROMs in the ORE Library include instruments and items created on the ORE platform, instruments that PatientsLikeMe has developed, publicly available instruments from PROMIS, and content from other PRO databases.
Show instruments that match:
Title/Author/Domains Description Performance Status

MS-TAQ Italian

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions.

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  • Published
  • 0 items
  • Nothing to import

MS-TAQ Polish

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Multiple Sclerosis  (1)
  • Barriers  (1)
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions. This version is in Polish. 

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MS-TAQ Spanish

Authors
PatientsLikeMe
Conditions
Multiple Sclerosis
  • Adherence  (1)
  • Medication  (1)
  • Treatment Adherence

The MS-TAQ is a self-administered tool for identifying barriers to adherence for MS patients taking disease-modifying therapies. The tool was originally developed by PatientsLikeMe, using the online platform for refining and validating questions.

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Multiple Sclerosis Rating Scale (MSRS)

Authors
PaulWicks, PatientsLikeMe
Conditions
Multiple Sclerosis
  • Functional Status

The MSRS, or the Multiple Sclerosis Rating Scale, is a measure developed by PatientsLikeMe to monitor MS progression. It is adapted from the Guy's Neurological Disability Scale.

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Neuromyelitis Optica Rating Scale (NMORS)

Authors
PatientsLikeMe
Conditions
Neuromyelitis Optica
  • Disease progression

The NMORS, or Neuromyelitis Optica Rating Scale, is intended for patients with NMO. It is a useful way for patients with NMO to track their own disease progression.

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Neuro-QOL Anxiety - Short Form

Authors
David Cella et al
Conditions
All
  • Anxiety

This short form was developed as a self-assessment tool for anxiety.

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  • Published
  • 0 items
  • License prohibits import

Neuro-QOL Communication - Short Form

Authors
David Cella et al
Conditions
All
  • Communication

The Communication short form developed by Neuro-QOL is intended to assess perception of difficulties related to oral expression, language production, and other aspects of communication.

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  • Published
  • 0 items
  • License prohibits import

Neuro-QOL Depression - Short Form

Authors
David Cella et al
Conditions
All
  • Depression

This scale was measured as a self-assessment tool for depression.

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  • Published
  • 0 items
  • License prohibits import

Neuro-QOL Emotional and Behavioral Dyscontrol

Authors
David Cella et al
Conditions
All
  • Emotional, Behavioral

This scale assesses manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness.

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  • Published
  • 0 items
  • License prohibits import

Neuro-QOL Positive Affect and Well-Being - Short Form

Authors
David Cella et al
Conditions
All
  • Well-Being

The Positive Affect and Well-Being - Short Form was developed to assess aspects of an individuals life related to an overall sense of purpose and meaning.

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  • Published
  • 0 items
  • License prohibits import

Optum 12-Item Short Form Health Survey (SF-12)

Authors
Optum Health
Conditions
All
  • Quality of Life

The Optum 12-Item Short Form Health Survey (SF-12) was developed to measure functional health and well-being from the patient's point of view. The SF-12 is a generic health survey used for adults 18 years of age and older across disease and treatment group.

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  • Published
  • 0 items
  • Nothing to import

Pain and Fatigue Rating Scale (PFRS)

Authors
PatientsLikeMe
Conditions
Fibromyalgia, ME/CFS
  • Symptom monitoring

The PFRS, or the Pain and Fatigue Rating Scale, is a measure developed to track Fibromyalgia and ME/CFS progression. It helps patients keep track of their overall condition by measuring fatigue, pain, morning stiffness and sleep disturbance.

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Palliative care Outcome Scale (POS)

Authors
Irene J. Higginson
Conditions
All, Advanced disease
  • Quality of Life

The Palliative care Outcome Scale, or POS, was developed in 1999 for use in patients with advanced disease and to improve outcome measurement by evaluating patients' physical symptoms, psychological, emotional and spiritual, and information and support needs. It is a self-administer adaptation of its precursor, the Support Team Assessment Schedule (STAS).

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  • Published
  • 0 items
  • Nothing to import

Parkinson's Disease Rating Scale (PDRS)

Authors
PatientsLikeMe
Conditions
Parkinson's Disease
  • disease progression  (1)
  • memory  (1)
  • Hallucinations  (1)
  • mood  (1)
  • Walking  (1)
  • and 14 more

This rating scale is adapted from the Unified Parkinson’s Disease Rating Scale, a standard tool used by doctors and researchers to measure the progression of Parkinson’s disease. There are questions on your mood and mental state as well as your physical symptoms and how well you are able to carry out particular tasks like getting dressed or writing with a pen.

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Patient Health Questionnaire - 9 (PHQ-9)

Authors
Dr. Robert L Spitzer, Dr. Janet BW Williams, Dr. Kurt Kroenke
Conditions
Depression
  • Mental Health  (1)
  • Depression  (1)
  • Mental Health

The PHQ-9 is a nine question screening form for depression.

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Patient Health Questionnaire (PHQ)

Authors
Dr. Robert L Spitzer, Dr. Janet BW Williams, Dr. Kurt Kroenke
Conditions
Depression, Anxiety
  • Anxiety  (1)
  • Mental Health

The Patient Health Questionnaire is an instrument for screening and diagnosis of mental health disorders.

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Patient Health Questionnaire (PHQ-SADS)

Authors
Dr. Robert L Spitzer, Dr. Janet BW Williams, Dr. Kurt Kroenke
Conditions
Anxiety, Depression
  • Somatic  (1)
  • Menstrual  (1)
  • Mental Health

The PHQ-SADS screening tool is part of the PHQ tools. It analyzes the co-occurrence of somatic, anxiety, and depressive symptoms.

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Pediatric Asthma Symptom Scale

Authors
RAND Health
Conditions
Asthma
  • Quality of Life

The Pediatric Asthma Symptom Scale is an 8-item scale used to measure control of asthma symptoms in English and Spanish children.

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  • Published
  • 0 items
  • Nothing to import

Pediatric Quality of Life Inventory (PedsQL)

Authors
James W. Varni, PhD
Conditions
Acute and chronic conditions
  • Health-related Quality of Life

The Pediatric Quality of Life Inventory is a modular approach that assesses patients' perception of health-related quality of life in children, adolescents, and those with acute and chronic conditions.

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  • Published
  • 0 items
  • Nothing to import

Perceived Medical Condition Self-Management Scale (PMCSMS) Generic Version

Authors
Ken Wallston
Conditions
Any chronic medical condition that involves patient self-management of the condition
  • Self-efficacy  (1)
  • Self-efficacy

This survey is intended to discover how people manage their medical condition. The responses from this survey will help us understand how confident you are in managing your condition and the things that influence your health status. This survey should take you about two minutes to complete.

Completion time
15.3 min

Physical Symptoms (PHQ-15)

Authors
Dr. Robert L Spitzer, Dr. Janet BW Williams, Dr. Kurt Kroenke
Conditions
Depression, Anxiety
  • Mental Health  (1)
  • Mental Health

The Physical Symptoms form is part of the Patient Health Questionnaires aiding screening for and diagnosis of mental health disorders.

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Positive and Negative Affect Schedule (PANAS)

Authors
Dr. David Watson, Dr. Lee Anna Clark
Conditions
All
  • Mood, Mental Health

The Positive and Negative Affect Schedule (PANAS) comprises two mood scales, one measuring positive affect and the other measuring negative affect. These two scales can be used in conjunction with personality traits to show relationships.

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  • Published
  • 0 items
  • Nothing to import

PROMIS Emotional Distress - Anxiety - Short Form 8a

Authors
PROMIS
Conditions
Anxiety
  • Anxiety

This PROMIS short form is a brief assessment of anxiety over the past week.

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  • Published
  • 8 items
  • Download JSON (beta)
  • License prohibits import

PROMIS Emotional Distress - Depression - Short Form 8a

Authors
PROMIS
Conditions
Depression
  • Mental Health

The PROMIS Emotional Distress - Depression - Short Form 8a is an eight item form intended for screening and assessment of severity of depression.

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  • Published
  • 8 items
  • Download JSON (beta)
  • License prohibits import

PROMIS Pain Interference - Short Form 8a

Authors
Amtmann, D.A., Cook, K.F., Jensen, M.P., et al.
Conditions
Chronic pain
  • Pain

The PROMIS Pain Interference Scale assesses the impact of pain on daily life through a short set of questions.

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  • Published
  • 0 items
  • License prohibits import

PROMIS Sleep Disturbance - Short Form 8a

Authors
Lan Yu, Daniel J Buysse, Anne Germain, et al.
Conditions
Sleep-wake problems
  • Sleep

The PROMIS Sleep Disturbance Short Form is a self-reported measure on the qualitative aspects of sleep and wake functions. It functions as a generic assessment of the severity of sleep-wake problems across a number of conditions.

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  • Published
  • 0 items
  • License prohibits import

Psoriasis Disability Index (PDI)

Authors
A Y Finlay, S E Kelly
Conditions
Psoriasis
  • Quality of Life

The Psoriasis Disability Index, or PDI, is designed to measure the effect of psoriasis on the quality of life in adults, ages 16 and over. The PDI is analyzed under five major quality of life headings: daily activities, work or school or alternative, personal relationships, leisure and treatment.

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  • Published
  • 0 items
  • Nothing to import

Quality of Life in Adult Cancer Survivors

Authors
Nancy E. Avis, Kevin W. Smith, Sarah McGraw, Roselyn G. Smith, Vida M. Petronis, Charles S. Carver
Conditions
Cancer
  • Functional Status  (1)
  • Quality of Life

The Quality of Life in Adult Cancer Survivors (QLACS) instrument was designed to assess quality of life issues specific long-term cancer survivors. The survey takes into account both functioning and patient satisfaction with functioning.

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Quality of LIfe in Epilepsy Inventory (QOLIE-89)

Authors
RAND Health
Conditions
Epilepsy
  • Quality of Life

The Quality of Life in Epilepsy Inventory, QOLIE-89, is a 17 multi-item questionnaire that measures overall quality of life, emotional well-being, role limitations due to emotional problems, social support, social isolation, energy/fatigue, worry about seizure, medication effects, health discouragement, work/driving/social function, attention/concentration, language, memory, physical function, pain, role limitations due to physical problems, and health perceptions.

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  • Published
  • 0 items
  • Nothing to import

Quality of Well-Being Scale, Self-Administered (QWB-SA)

Authors
Theodore G Ganiats, Robert M Kaplan, William J Sieber
Conditions
Any
  • Health-related Quality of Life

The Quality of Well-Being Scale is an instrument designed to measure health-related quality of life.

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  • Published
  • 0 items
  • Nothing to import